Very high Ebv count causing lots of problems.?

When i was 20 i came down with momo well at least thats what the dr said, i had a very high ebv count. So as time passed i got worse it started with inflammatory disorder involving the skin, my skin would press in fairly easy and it would take a while for it to go back in the correct form nd pain would arise easily if i got touched the wrong way. over the years i also had bone pain, adominal fullness, wide spread fatigue. The newer symptoms i have now are neurlogical disorders hyperreflexia twitching of fingers, muscle weakness,nd also fasculations, floaters in my eyes, loss of words, swallowing problems .I had many test they came back negative. its been 5 years now i recently did another ebv test it came back even higher then the first so it might have something to do with it..anyone go thru this??

Very high Ebv count causing lots of problems.?
My 16 year old daughter has the same problem. Some doctors say chronic Epstein Barr others lean toward Fibromyalagia - both auto immune - wide spread pain disorders. Have you seen a rheumotologist and neurologist ?


I know how stressful and depressing it can be. There are several different support groups you may consider visiting at webmd. It may help to talk to to others who are in the same boat. Stay on top of your health care and doctors. Keep a journal of you signs, symptoms, meds and any reactions you have and travel to all your doctors with it. Also, always request copies of all your lab and test results for your own records. Hope this helps a bit.
Reply:Antibody testing for EBV is a little complicated. There are three different types of EBV assays offered at commercial laboratories. These antigens are the viral capsid antigen (VCA), the early antigen (EA), and the EBV nuclear antigen (EBNA). In addition, differentiation of immunoglobulin G and M subclasses to the VCA can often be helpful for confirmation. The optimal combination of EBV serologic testing consists of the antibody titers to all four markers: IgM and IgG to the VCA, antibody to the EA. Antibody to EBNA is not seen in the acute phase, but slowly appears 2 to 4 months after onset, and persists for life. Most physicians use of this test is to determine if an EBV infection is the initial infection or a secondary/ reactivated infection. A low EBNA in the presence of a high VCA titer suggests an immune deficiency. For reactivated infections, only the absolute level of the IgG titer is usually significant. The best way to interpret the results from your laboratory is to ask your doctor to find out median and range values at the laboratory for controls or blood donors. If your result is in the top quartile you are more likely to have an infection, but there is not way to know for certain. Patients who are immunosuppressed and have a low IgG may show up with low antibody levels in spite of active disease. If the IgG is low normal or below normal, then the HHV-6 and EBV antibody test results may also be suppressed. Similarly, some patients with very high IgG may have high EBV and HHV-6 antibody levels that do not indicate active disease. These considerations need to be evaluated by a knowledgeable physician.


I add a link with details of this subject





http://www.cdc.gov/


ncidod/diseases/ebv.htm





Hope this helps


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